IMPORTANT NEWS – PLEASE READ
A new system of extracting patient medical information, from GP surgeries, has been proposed by the Health and Social Care Information Centre (HSCIC) and NHS England on behalf of the NHS.
The data to be extracted from GP systems for the ‘care.data’ service includes personal confidential data such as date of birth, postcode, NHS number and gender, all required by the HSCIC.
The intended purpose of the data collection is to help provide ‘joined-up information about the care received from all of the different parts of the health service, including hospitals and GP practices’.
The information will also be used for research; ‘Marketing and drug companies will not have access to information that identifies you unless you give your specific permission, such as if you have been contacted by your GP practice and you agreed that researchers could contact you about a clinical trial’.
Under the powers of the Health and Social Care Act 2012 (HSCA), the Health and Social Care Information Centre (HSCIC) can, under certain circumstances, require personal confidential data from GP practices without seeking patient consent.
HSCA creates a statutory obligation for GP practices to disclose the data to the HSCIC.
It has not been confirmed when the data extraction is to start.
You have a choice:
You can object.
You can object to the extraction of the personal confidential data from the GP practice. This type of objection will prevent the identifiable information held in your GP record from being sent to the HSCIC. It will also prevent those who have gained special legal approval from using your health information for research.
You can also object to any information containing data that identifies you, from leaving the HSCIC. This includes information from all places you receive NHS care, such as hospitals. If you do not object, information that identifies you will leave the HSCIC in limited circumstances where there is special legal approval, for example for medical research.
Should you wish to object, please print out the opt-out form, complete the details and forward to us by:
email via the contact page, by post, or hand in at reception.
If you do not have any objections to the care.data programme, data will be extracted in the coming weeks if you choose not to opt-out.